Tuesday, October 9, 2012

Double Whammy!

It's been awhile since I've updated. Bennett WAS doing well from July up until the first week of September. She had two whole months that she was doing well. It all began with a runny nose and cough. We did oral abx and upped treatments. They didn't help! She had a CF appointment on September 24th. Her lungs sounded clear. She was still coughing. PFTs were down from July. Dr. Rubenstein put her on Augmentin again for 14 days and continue upped treatments. She started to show improvements the first few days. Over the weekend her cough had gotten worse and she was bringing up tons of junk when coughing. She was miserable. Working harder to breathe. Easily winded just walking up the stairs. I made an appointment with her Pediatrician so he could listen to her lungs. Yesterday, her lungs sounded very junky, her chest was tight, wheezing in upper and lower airways and diminished airflow on expel. Dr. Dedeoglu decided to put her on yet another 14 days of antibiotics to try to prevent her from getting a post secondary infection on top of everything else that's going on. He said she's having a severe asthma flare up on top of the CF Exacerbation. It's a double whammy and hits her twice  as hard. She's suppose to be taking it easy so she is off of gym for two weeks. I'm suppose to send her to school as long as she's physically able. Because if I refuse to allow her to go when she wants to it will cause her to resent me and CF. I am hoping that with 14 more days of upped treatments and airway clearance that she starts feeling better.  Her cough is very heartbreaking. It is the the worse feeling in the world watching your daughter coughing until she is unable to breathe, her face bright red with a blueish tint. I feel so helpless! 

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